Bleeding News & Recent Research

2024 – December

“Only 8.8% of NIH research spending from fiscal years 2013 to 2023 targeted women’s health research…” Read the full report from The National Academies of Sciences, Engineering, and Medicine (NASEM) via the Society for Women’s Health Research.

2024 – July

Thank you to the Collectively Coexisting podcast and Remember the Girls for having us as guests on Episode 54: Discussing X-Linked Carrier Status with your Daughter (Their Lived Experience).

2024 – May

2024 National Health Council Science of Patient Engagement Symposium: Patient Experiences through their Lifespan. Session: Future GOATs: Engaging with the Adolescent Community

2023 – September

• Children’s National Hospital: Young Women and Iron-Deficiency Anemia

2023 – June

• Research Study: Prevalence of Iron Deficiency and Iron-Deficiency Anemia in US Females Aged 12-21 Years, 2003-2020

2023 – March

• Video: Margaret Ragni, MD, MPH: Women who are Hemophilia Carriers Need Treatment Options
• Article: Lived Experience Experts, A Name Created for Us by Us
• International Lens: Let’s Hear it for the Girls

2022 – January

• Research Study: The Lived Experience of Women with a Bleeding Disorder, A Systematic Review

2021 – November

• Article: Changing the Language of Hemophilia

2021 – August

• Research Study: A New Hemophilia Carrier Nomenclature to Define Hemophilia in Women and Girls: Communication from the Scientific and Standardization Committee (SSC) of the International Society on Thrombosis and Haemostasis (ISTH)