October 6-8, 2023 Hemophilia Foundation of Michigan Women and Teens with Bleeding Disorders Conference
Summary:
Earlier this month, I had the opportunity to virtually attend Hemophilia of Michigan’s National Conference for Women and Teens. Spanning three days, the conference addressed a wide variety of topics geared specifically toward the experiences and needs of women and teens with bleeding disorders. Prominent medical professionals detailed recent advancements in research and the need for inclusivity and accessibility in scientific studies. Representatives from Hemophilia of Michigan took participants back in time on a journey through the history of bleeding disorders, highlighting the role of women in driving scientific and social change. Psychologists and patient advocates reviewed the connection between identity and mental health, while staff from various Hemophilia Treatment Centers (HTCs) described the necessity of holistic, comprehensive treatment for women and girls with bleeding disorders.
Response: Red Ink
- While there continue to be many advancements in the bleeding disorders community, more time needs to be devoted to the intersection of bleeding disorders and women’s health. Additionally, awareness of women’s conditions outside of the community must be matched by recognition of women’s support within the community, and a mutual effort to target intersectional issues that acknowledge the unique challenges of women with bleeding disorders.
- Red Ink is dedicated to working on issues that address the multifaceted identities of women with bleeding disorders, such as Newborn Screening and the Period Tax.
Red Ink 