September 29, 2023 World Federation of Hemophilia Women and Girls with Bleeding Disorders Global Summit
Purposeful Inclusion of Women in Research
Speakers:
- Roshni Kulkarni, Professor, Michigan State University Center for Bleeding and Clotting disorders, Michigan, United States
- Tahira Zafar, Prof. of Haematology; Director HTC; Chairperson; Medical Advisory Board, Pakistan Haemophilia Patients Welfare Society, Rawalpindi, Pakistan
- Angela Weyand, Associate Professor, University of Michigan Medical School, Michigan, United States
- Ellia Tootoonchian, Data & Research Manager, World Federation of Hemophilia, Montreal, Canada
Summary:
In this session, medical professionals in the bleeding disorders community highlighted the necessity of female inclusion in bleeding disorders research. After discussing data showing the inequality between male and female inclusion in research studies, scientists underscored the inherent bias in research that focuses on men with bleeding disorders and its inability to speak comprehensively on symptom presentation in women. Researchers also briefed the audience on the importance of utilizing and stretching resources in nations with varying levels of medical infrastructure and funding as a way to complete significant, global research. Finally, all speakers reflected on the pathway forward toward increasing female involvement in research and the number of female-led studies that consider all aspects of women’s health.
Response: Red Ink
- Quality of life for women with bleeding disorders can only improve with women-led and women-driven research.
- Red Ink plans on raising funds to donate to organizations that support the presence and participation of women with bleeding disorders in bleeding disorders research.
Red Ink 