Women with Hemophilia, Now is Your Time: NBDF Session Report

August 19, 2023 National Bleeding Disorders Foundation Bleeding Disorders Conference

Industry Breakfast Symposium: Women with Hemophilia, Now is Your Time 

Speakers:

  • Shveta Gupta, MD (Pediatric Hematology and Oncology at Orlando Health/Arnold Palmer Children’s Hospital)
  • Tammy – from NovoNordisk, on Esperoct

Summary:

In “Women with Hemophilia, Now is Your Time,” Dr. Shveta Gupta, a hematologist at the Pediatric Hematology and Oncology clinic at Orlando Health Arnold Palmer Children’s hospital, spoke about the unique struggles women face in the bleeding disorders community. Both Dr. Gupta and a patient representative from NovoNordisk discussed the difficulty of working with barriers to diagnosis, as well as the reality of changing Hemophilia Treatment Centers in order to receive appropriate treatment and comprehensive care. 

Response: Red Ink

  • This session highlighted the importance of community conversations as a path forward to broader awareness of women with bleeding disorders.
  • It is essential that Red Ink work to de-stigmatize menstrual health, as doing so is crucial to redefining treatment of women with bleeding disorders.
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